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Patient Perspectives

Patient engagement/self-management

12S152: Patient Perspectives (PP14–PP17)

Sunday, November 12, 2023
4:00 PM – 5:00 PM PT
Location: Room 1A-B

On Demand In Person

    Patient Presenter(s)

  • MA

    Mary Alore, MBA

    Self-employed
    TROY, MI, United States

    Disclosure(s): No financial relationships with ineligible companies to disclose

  • Noriko Okochi, PhD

    Rheumatic Disease and Vasculitis Support Network Japan
    Tokyo, Japan

    Disclosure(s): No financial relationships with ineligible companies to disclose

  • Natasha Trehan, BSc (she/her/hers)

    3rd Year BioMedical Science Student
    University of Ottawa, Take a Pain Check Foundation
    Markham, ON, Canada

    Disclosure(s): No financial relationships with ineligible companies to disclose

  • BV

    Brian Vogel, -None-

    Lupus and Allied Diseases Association, Inc. (LADA)
    San Diego, CA, United States

    Disclosure(s): No financial relationships with ineligible companies to disclose

The goal of the Patient Perspectives session is to allow people affected by rheumatic disease to share their journeys and experiences with the thousands of rheumatology healthcare providers who will attend ACR Convergence. Patients will present their own perspectives to address the following question: “What adaptations did you and/or your healthcare team adopt to better care for your health?"

Learning Objectives:

  • Acknowledge the breadth of strategies that patients engage in to help cope with the challenges of chronic disease.
  • Describe processes by which patients and members of their healthcare teams actualize innovative solutions to improve patient well-being.
  • Summarize creative problem-solving techniques by patients on behalf of themselves and the community of others with rheumatic diseases.

Presentations:

  • 4:00 PM – 4:10 PM PT
    Putting Lived Experience into Action: Flipping the Script on Living with a Chronic Disease

    Patient Presenter: Natasha Trehan, BSc (she/her/hers) – University of Ottawa, Take a Pain Check Foundation

  • 4:10 PM – 4:15 PM PT
    Q&A
  • 4:15 PM – 4:25 PM PT
    Toward a Frontier Beyond the Barriers of Position and Prejudice

    Patient Presenter: Noriko Okochi, PhD – Rheumatic Disease and Vasculitis Support Network Japan

  • 4:25 PM – 4:30 PM PT
    Q&A
  • 4:30 PM – 4:40 PM PT
    Peer Health Coaches Help Scleroderma Patients Cope with Isolation

    Patient Presenter: Mary Alore, MBA – Self-employed

  • 4:40 PM – 4:45 PM PT
    Q&A
  • 4:45 PM – 4:55 PM PT
    Utilizing Support Networks to Improve Patient Outcomes

    Patient Presenter: Brian Vogel, -None- – Lupus and Allied Diseases Association, Inc. (LADA)

  • 4:55 PM – 5:00 PM PT
    Q&A